Tuesday, June 4, 2013

One Thing that We Have Done Right

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In my attempt to be real with you, I feel like I share a lot of yuck.  The many areas in my life that I struggle with anxiety, anger, bitterness, frustration, and overall lack of self-control.  I peel off the mask and show how God is working in my life. 

Today, I am going to share with you the complete opposite.  Now, it didn't seemed like a positive but I am realizing that in actuality it is. 

Let me explain.

Only those who have spent several minutes in a conversation with Bubs realize the degree of issues that Bubs is dealing with.  Only those who have lived life with us, realize the emotional issues with which Bubs struggles. 

Everyone else...well, they don't get it.  At least to the full degree. 

Even Bubs' therapist has said that she understands why people think we are crazy.  From the initial view of Bubs, one will see a sweet boy.  One would think he is a little shy but overall there is nothing wrong with him.  But as our therapist has spent more and more time with him, she has seen many areas of concern.  The concerns that we have been battling for several years.

This week we are headed to the children's hospital to see a neuro-pyschologist.  Our therapist and school pysch are expecting us to come home with an autism or neuro diagnosis. 

In talking to those in our circle, I often hear, "Oh Bubs doesn't have autism."  Sometimes I hear, "Bubs? He is normal."  Other times, "Why are you going to another doctor?".

Honestly, this really frustrates me.  I feel like a hypochondriac momma! My pride gets in the way as I take it personally.

But in talking to my husband and our therapist, I have realized that the fact that our friends don't realize the degree of Bubs' issues means that we are doing something very right.  It means that we are protecting Bubs when he is unable to protect himself.

For example, as soon as Bubs begins to meltdown, we wisp him away from others so that he can gain control in a safe place.  When Bubs begins talking without logical sequence, I interpret for him so others can follow his conversation.  For activities that will require focus, we provide Bubs with a lot of sensory input before we attend to help him handle the situation. 

We can't protect Bubs from everything but the fact that our friends don't see the degree of issues that Bubs struggles with is exactly as it should be.  Praise be to God that He has shown us the importance to do this. 


Share your thoughts.

3 comments :

  1. Thinking of you during this time, I know it's hard. I have a child with a neurological syndrome myself and I hear those same things, most people don't notice the subtle things and think he's just normal. When I say he's strong willed or stubborn people usually don't believe me(some of my friends have seen it first hand tho). Thank you for giving me a new perspective on that. Praying for you.

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  2. This post really resonates with me...thank you for this insight. I also have so many asking why my 7yo needs any kind of help. They don't' often see the side I do. Then, my mom or sister will be there for an episode and say, "oh, that's what you were talking about". Thank you for the encouragement as always!

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  3. Just goes to show that no one really knows what someone else is going through or coping with and just how much we need to deal with each other with grace, mercy, and love.

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The Our Out-of-Sync Life blog focuses on encouraging women to deepen their spiritual life, simplify daily tasks, and impress Jesus on the children around them.